School has started…. We are already off to an excellent start to the year….. I cant wait for apple picking, pumpkin spice, scarves, sweaters, hot coffee- anytime of year… I just love FALL!!!!! We’ve already started decorating and bringing out our Fall Décor… anyone else doing the same thing……
My babies….. these first days of school pics are my favorite…. So much joy and wonder for the new school year….such fun…
If there is one suggestion that I can give as far as a parent starting school with a child who has a disability or IEP OR any child….My best advice….. Get to know the teachers…. Let them get to know you as a parent and advocate… this way you can feel open and honest when sharing what you think your child needs.. AND the teacher can feel comfortable following up with you on things…. Be assertive and direct…. Asserting what is best for your child has to be direct and with a solid relationship between the school and you makes things so much easier…. Im speaking from sitting on both sides of the meeting table…….
Doesnt everyone have such fun in a Dr office…. My boys sure do…. Honestly sometimes I feel like this place is my second home…… LOVE our Dr, but we need a little break … (Side Note: All I can think of is Ross from Friends saying, “WE WERE ON A BREAK”... anyone else-lol)..… Back to the boys….. Unfortunately, Carter had a round of sickness over the last couple of weeks…. Life has ups and life has downs…. …...Trying times for this baby and his momma…… THANK GOODNESS for medication…. Trust those instincts Mommas!!!!! I knew something just wasnt right with Carter!!!! BUT in true Carter form, he takes after his Daddy on this, he kept going with a smile..…
Thankfully, he’s on the mend and slowly getting back to his old self….
Colby is thriving with auditory directions…. This kiddo picks up on everything… For the most part, Colby is non-verbal… I say that with pride….. His vocal cords need muscle strength, and Colby has low muscle tone… Speaking requires strength and so we know he will get it in Colby-Time…. YET, Colby doesn't let that stop him. He is very very receptive and picks up on everything… This little toy kept telling him what to do…. Eat, drink, or etc… he was cracking up at it and very very focused on what it said….. SUCH FUN!!!!!
Happy FALL!!!!! Much Love
Be honest…. How many of you have seen a family or parent with a child who has a disability and felt sadness… maybe even pity…. At Target, the park, mall, or etc…. It wasn’t intentional but it was there. In your heart… in your eyes….sadness/pity…. I know, I've been right there with you- I've given “The Look” ….. The one I now get countless times a day- at Target, baseball games, just living life…….
But I have a secret….. One I live with that makes me smile,. You see, seconds after Colby was born, I was sad, mad, scared…. I didn’t choose this, and I didn’t want my baby to suffer or be pitied- given “The Look” that I had given to others….. And so... I was SAD!!!!!!
All I could feel was sadness……. I was sitting there in the NICU, and it all felt wrong….. A nurse, who still to this day I don’t know her name, was assigned to Colby. She was my age and during those beginning days- nurses know that Mommas need time…… so she would come and go- checking vitals, making notes, and every once in awhile she would smile at me….. but this smile was different…. It was special. The kind of smile someone gives you when they know something you don’t…..it was like she knew something no one else did…..like she had a secret….. I just smiled back and again I was SAD so my tricky emotions swallowed up her secret smile….. hours… days went by….. those days felt like years…. Each moment bringing me new fears and questions and emotions….. but my friendly nurse wasn’t finished…. She approached me at the end of her shift… after rounds…. After she was off… she was supposed to go home BUT she stayed to talk to me……. Her words still resonate in my heart…. She said that she wasn’t sure when she would see me again- being a floating sub- and she needed to tell me this…. She said, “Life will be so much better than you know. Im just like you, my baby has Down Syndrome.” And just like that I knew she knew me… the real me… not the strong Momma trying to make decisions but the SAD momma whose heart was aching…. She and I had a sweet chat, but I still didn’t understand her SMILE… I wasn’t ready to…….BUT now…three years later….. I know….. NOW I understand…. SHE WAS PROUD……
Because we live in a special world…….one that most know nothing about…. It's like a secret club that others might pity but in reality it’s so so so much better!!!! AND we are PROUD…. Proud of our babies, proud to show the world, proud that we are a part of this secret group!!!! I can’t help but think of the book Secret Garden- the reading teacher in me- It's right in the middle of life and no one knows it’s there…. But those who do… share a secret smile…… So today I share my secret with the world…. I share my pride for my baby and I share my smile…. And LIFE is truly BEAUTIFUL!!!!
Oh how I missed you !!!! With the ending of Summer and the start of school, I just wasn't ready to give up those last days!!!!! Anyone else feel like this Summer has flown by!!!!! We had such a wonderful one!!!!
Now that school has started I'm ready for Pumpkin season.....Pumkpin spice, sweater, Fall clothes, Hot Coffee- well that's year round!!!! I'm so excited!!! Will be posting our Harvest checklist again!!!! Comment below any ideas that your thinking of trying this Fall!!! Places, restaurants, etc......So much fun!!!!!
I decided to try something to kick off the school year!!! Being a teacher and all, I decided to share my favorite eye makeup
tips in a live video!!!! Let me know what you think!!! I thought it would be fun!!!! Linked below!!
Hope your Summer is ending with lots of fun and love!!! Much Love!!!!